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NNPDF Family Support & Medical Conference

Scholarship Application

NNPDF Family Conference Scholarship funding is available to help families ease the cost of attending the Family Support and Medical Conference in Concord, NC from July 10-13, 2025. Scholarship assistance will provide up to 3 nights hotel (room and tax only at the group rate) and up to 2 adult conference registrations to eligible applicants. Scholarship assistance is limited to immediate NNPDF U.S. family members of an individual with Niemann-Pick Disease.


Please review the Scholarship Guidelines carefully before completing the application.


Please call Laurie Turner, Family Services Manager at 920-542-4038 or email familyservices@nnpdf.org with any questions or if you need assistance completing the application.


Application Deadline is April 10th


Applicants will be notified of funding no later than April 25th

Scholarship applications submitted after the April 10, 2025 deadline will be reviewed on a case-by-case basis and placed on a waitlist. Families on the waitlist will be notified by email as soon as possible if funding becomes available.

* First Name
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* Last Name
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* Street Address
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* City, State, Zip
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* Phone Number
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* Email Address
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* Name of individual(s) with Niemann-Pick Disease:
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* Niemann-Pick Disease type you are associated with:
* Your relationship to individual with Niemann-Pick Disease:
* Estimated total expenses associated with attending the NNPDF Family Support & Medical Conference:
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* Number of adults attending:
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* Number of children attending:
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* Please list the names of all family members that will attend the conference. Please include ages for children.
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Family Conference Early Bird Registration Fees: Adult $175, Children $75 (6-17). Individuals with Niemann-Pick Disease or children ages 0-5 are free of charge.

* I would like to request:

Hotel Room Cost: $179 per night + $24.61 tax & fees = $203.61 per night

* I would like to request conference hotel assistance for:
* Please explain how receiving the NNPDF Family Conference Scholarship will benefit your family.
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* Are you a First Time NNPDF Conference Attendee?
* Have you received funding assistance for a previous family conference from the NNPDF?
If yes, please list year(s) below.
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* Name
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* Date
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Application Deadline April 10th



Scholarship recipients are responsible for making hotel reservations and will be responsible for any incidental charges associated with the room including “no show” charges. Hotel reservations must be made at the NNPDF group rate. NNPDF will pay for the conference hotel accommodations directly.


If you do not see a "Thank You" screen after clicking the SUBMIT button below, please contact Laurie Turner at familyservices@nnpdf.org.

NATIONAL NIEMANN-PICK DISEASE FOUNDATION, INC.

PO Box 49, Fort Atkinson, WI 53535-0049

877-287-3672 | nnpdf@nnpdf.org | nnpdf.org