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Introduction to FASD from the Self-Advocate Perspective

This powerful training offers a rare opportunity to learn about a firsthand look at life with Fetal Alcohol Spectrum Disorders (FASD) through the lived experiences of Alex, a young adult with Fetal Alcohol Syndrome, and his mother. Together, with honesty and humor, they share their journey of challenges and strengths that come with a diagnosis as well as hope, highlighting the power of empathy, communication, and understanding in supporting individuals and families with FASD. Don't miss this self advocate and his mother sharing about their experience and Alex's unique brain.

Free

Date: Wednesday, December 10, 2025

Time: 6 - 7pm EST

Cost: FREE

This powerful and heartfelt training offers participants a rare opportunity to understand Fetal Alcohol Spectrum Disorders (FASD) through the lived experience of a young adult diagnosed with Fetal Alcohol Syndrome. Co-presented by Alex and his mother, this session explores both the challenges and the strengths that come with a FASD diagnosis, emphasizing the importance of empathy, communication, and connection in supporting individuals and families on this journey. With honesty and humor, Alex shares his personal story, describing what his diagnosis means to him and how it has shaped his life, from school and friendships to independence and advocacy. He offers insight into both the struggles he faces and the “superpowers” that come with his unique brain. His mother adds a parent’s perspective, reflecting on their shared path toward understanding, resilience, and hope. Together, they provide an inspiring look into what it means to live, and thrive, with FASD.


The Florida Center for Early Childhood operates FASD Diagnostic Clinics in Sarasota, Orlando, and the panhandle!


TAKEAWAYS:

  • Experience a powerful firsthand account of what it’s like to live with FASD.
  • Recognize the importance of self-advocacy and empowering individuals with FASD.
  • Gain meaningful insight into the challenges and strengths of individuals with FASD.
  • Discover the importance of family support, patience, and communication in fostering growth and resilience.
  • Learn strategies for professionals and caregivers to better understand individuals with FASD.



PRESENTERS:

Alex Carver

FASD Self Advocate


Alex Carver is a 21-year-old FASD Warrior. Adopted from Russia at 13 months old, Alex has spent hundreds of hours in occupational, speech, music, and equine therapy. He recently graduated from High School and is learning how to drive. He’s also working with Vocational Rehab to find a job he will enjoy. He is witty, charming and a bit mischievous. He lives at home with his Mom, Dad, Cat, Dog and Turtle in sunny Florida. Getting along with this crazy over-protective parents isn’t always easy but they all love each other deeply.

Pam Carver

FASD Coordinator, Sarasota FASD Clinic


Pam’s background is in business management, but she was woefully unprepared her FASD journey. Her adopted son Alex was diagnosed with FAS at age 3. Now he’s 20 years old. Pam has spent countless hours learning about FASD and helping Alex live his best life. Pam is the Intake Coordinator for our FASD Clinic’s Sarasota Office. When not helping families and advocating for Alex, Pam enjoys gardening and drinking coffee.