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Lived Experience Matters: FASD through the Voice of a Self-Advocate

This powerful and insightful training offers participants a unique opportunity to understand Fetal Alcohol Spectrum Disorders (FASD) through the lived experience of a young adult diagnosed with Fetal Alcohol Syndrome. Co-presented by Alex and his mother, this training highlights both the challenges and strengths that come with the diagnosis, as well as the importance of empathy, communication, and support in the journey of individuals with FASD and their families. Don't miss this self advocate and his mother sharing about their experience and Alex's unique brain.
Register

Free

Date: Wednesday, September 16, 2026

Time: 12:00 pm - 1:30 pm EST

Cost: FREE
 

With honesty and humor, Alex shares his personal story, describing what his diagnosis means to him and how it has shaped his life, from school and friendships to independence and advocacy. He offers insight into both the struggles he faces and the “superpowers” that come with his unique brain. His mother adds a parent’s perspective, reflecting on their shared path toward understanding, resilience, and hope. Together, they provide an inspiring look into what it means to live, and thrive, with FASD.


The Florida Center for Early Childhood operates FASD Diagnostic Clinics in Sarasota, Orlando, and the panhandle!


TAKEAWAYS:

  • Experience a powerful firsthand account of what it’s like to live with FASD.
  • Recognize the importance of self-advocacy and empowering individuals with FASD.
  • Gain meaningful insight into the challenges and strengths of individuals with FASD.
  • Discover the importance of family support, patience, and communication in fostering growth and resilience.
  • Learn strategies for professionals and caregivers to better understand individuals with FASD.

PRESENTERS:

Alex Carver

FASD Self Advocate


Alex Carver is a 21-year-old FASD Warrior. Adopted from Russia at 13 months old, Alex has spent hundreds of hours in occupational, speech, music, and equine therapy. He recently graduated from High School and is learning how to drive. He’s also working with Vocational Rehab to find a job he will enjoy. He is witty, charming, and a bit mischievous. He lives at home with his Mom, Dad, Cat, Dog and Turtle in sunny Florida. Getting along with this crazy over-protective parents isn’t always easy, but they all love each other deeply.

Pam Carver

FASD Coordinator, Sarasota FASD Clinic


Pam’s background is in business management, but she was woefully unprepared for her FASD journey. Her adopted son Alex was diagnosed with FAS at age 3. Now he’s 21 years old. Pam has spent countless hours learning about FASD and helping Alex live his best life. Pam is the Intake Coordinator for our FASD Clinic’s Sarasota Office. When not helping families and advocating for Alex, Pam enjoys gardening and drinking coffee.

This free training is offered as part of the FASD Program’s grant-funded deliverables and is hosted by The Florida Center Training Institute. Optional Continuing Education Units (CEs) are available for a separate administrative fee.

Sponsored by The Florida Center and the State of Florida, Department of Health
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