22 Years of Hope. One Relentless Mission.

May 14, 2026 marks 22 years of the IgA Nephropathy Foundation leading the fight against IgAN. Together, we have turned hope into action by advancing research, expanding support, and driving progress toward better treatments and a cure.


Now, we come together once again for IgAN Aware Day and Spirit Week to raise awareness, empower our community, and help more people understand their risk for IgAN. Early detection is key, and every voice helps make a difference.


This week is about you, our patients, caregivers, and advocates. Your stories, your strength, and your commitment continue to move this mission forward.


Together, we are shaping the future of IgA Nephropathy—advancing what is possible today while building toward a tomorrow where no patient faces this disease alone, and a cure is within reach.

Join us. Share your story. Raise your voice. Let’s continue this journey together and create an even greater impact.

Please tag us in all posts on Facebook, X, LinkedIn & Instagram: @iganfoundation

Use the following hashtags:

• #IgANDay
• #IgANaware
• #IgANfamily
• #IgANjourney
• #IgANHope

To Post Before IgAN Awareness Day:

22 Years of Hope: Then and Now
For 22 years, our community has transformed hope into action. What began as a grassroots effort has grown into a global movement advancing research, expanding resources, and driving treatment progress.

Today, reflect on how far YOU have come.

• Share a milestone from your IgAN journey

• Highlight a moment of progress in research or awareness

• Tell us about your support - who shows up for you



Every story is part of this legacy.

To Post During Spirit Week [In any order that you want]:

Kick Off Spirit Week

It’s IgAN Aware Spirit Week, and I’m proud to be part of this amazing community! Living with IgA Nephropathy has been a journey, and I’m grateful for the support from my family, friends, and fellow warriors. 


Today, I’m sharing my story to raise awareness. If you or someone you love has IgAN, you are not alone. Let’s lift each other up! (Upload a photo of a notable moment in your IgAN journey, add context and share how being part of the IgAN Family has benefited you) @iganfoundation #IgANaware

Monday, May 11 – Whole-Person Health

Patient voice

IgAN affects more than my kidneys. It affects my energy, my mindset, and my daily life.

Today, I’m focusing on my whole health, physically and mentally. Whether it’s rest, movement, or support, it all matters.

If you’re supporting someone like me, check in. Learn more. Be part of their care.

Caregiver voice

Caring for someone with IgAN means supporting more than just their health. It means being there for the emotional and everyday moments too.

Today is a reminder to take care of ourselves as well.

Stronger support leads to stronger outcomes.

Tuesday, May 12 – Education Drives Access

Patient voice

I didn’t know what IgAN was until I was diagnosed. Today, I’m choosing to be IgAN Aware by sharing what I’ve learned.

If you’re a friend or family member, take the risk quiz and consider a kidney screening. Early detection matters.

Education leads to answers. Answers can change outcomes.

Caregiver voice

Knowledge has helped me better support someone I love.

Today, I’m encouraging others to learn about IgAN, take the risk quiz, and talk to their doctor about kidney health.

The more we educate, the more we can help others get diagnosed earlier.

Wednesday, May 13 – Global Access for Every Patient

I know how important access to care is.

Every IgAN patient deserves answers, support, and treatment, no matter where they live.

Access starts with awareness.

Encourage your family and friends to take the risk quiz, explore resources, and ask about kidney screening.

Together, we can help more people get the care they need.

Thursday, May 14 – IgaN Aware Day

Today we celebrate the IgAN community.

The strength. The resilience. The voices that continue to push this mission forward.

Proud to be part of the IgAN family.

Friday, May 15 – The Future Is Built By Us

Progress happens because patients and families show up, share their experiences, and participate in research.

I’m proud to support the IgAN Hope Patient Registry and the voices driving change.

The future is built by us. No one fights IgAN alone.

Sat., May 17 – Celebration Day:

Celebrating Accomplishments:

With 5 FDA-approved treatments in the U.S., ongoing clinical trials, a growing membership community, and meaningful programs like events and support groups, the past 22 years have filled me with pride to be part of the #IgANfamily and support the @IgANFoundation in driving progress. Together, we are a global community, united by shared experiences and a commitment to move care forward.

We have real hope that access to care, resources, and treatment will continue to expand to patients around the world. Because no matter where you live or how old you are, every IgAN patient deserves a future with options.

No one fights IgAN alone.