The IgA Nephropathy Foundation is a patient-centric 501(c)(3) charitable organization focused on finding cures for IgA Nephropathy.
There is an urgent need to raise awareness about IgAN, including how it differs from other chronic kidney conditions, and to help assure more timely diagnoses.
Nearly half of patients (48%) faced delays before being correctly diagnosed with IgAN. For many, the condition had been misdiagnosed for an extended period of time, which could have resulted in preventable declines in their kidney function.
A fair number were unsure of their stage of disease, which has important implications for treatment and life decisions.
We can take action to improve patient diagnoses.
As part of our mission to build a support network, we have created the “IgANCARE” program, which will serve as a medical provider resource for patients with IgA Nephropathy. We are actively looking for Nephrologists willing to participate in this program. There is no cost to participate, and your participation will help improve the lives of our patients living with IGA Nephropathy.
We ask that you consider joining us and help our community of IgAN Patients
If you have any questions please contact us at [email protected]